How are Things?

Tag: special needs

  • Wednesday 23rd July 2025

    Right, well, here we go. No jazz concepts to calm the soul tonight my lovelies.

    My son has special needs. He can’t spend his summer at Summer camps as so many places won’t cater to him and he thinks they are rubbish in any case. So, there is a scheme where you can hire a qualified person to come to your home and take care of him, for a maximum of 40 hours over the total summer. It is a tiny thing but it is there. You fill in a form, you send it off, you get approved, you’re good. My son has a favorite person who has come to us several summers in a row, and it was all going like clockwork.

    She asked me today about the form, and I should have received confirmation way back in June about it. And I didn’t. I hunted through the items in my inbox, and on my desk, and true to form, there was the fubbing form untouched in the envelope his school had sent it home to me. I think I got it late April but maybe May, and had all of that month to send it in and then June as well. And I ruddy well forgot!

    I now owe this woman three figures that she has more than earned and I have to hand it over straight away, as in, tomorrow. How can I be so stupid? My first reaction in such moments is that I’ve discarded the right to live, I’m so stupid. And I have no one else to blame!

    There was a dreadful moment last year, after we were evicted and living in a city center flat, where I let getting the electricity set up go too long. It was absolutely my fault, I just let weeks go by and didn’t do it. Then they shut us off, and I had to get it back on pronto. It meant paying a reconnection fee, and dinners for my son in McDonalds. I was lucky, I still had a membership fee at the gym so we could go for swims, take hot showers, lunch in town… I was privileged. But it was completely unnecessary, just being too delicate to deal with the realities of life! Lying in the dark that night, I felt that a lesson of life had been shown to me; suffer the pain of practicalities or suffer a greater pain in their absence.

    And yet here we are again! Things sliding off me like algae off the side of a stagnant pond; why am I so stupid?! Why?

    I am supposed to be amazing everyone at work regarding my marvelous skills, and I’m honestly wondering if I should be here at all. What a waste of flesh!

  • Tuesday 8th July 2025

    I woke at 5am for some reason believing it to be Saturday. My brain is craving release. I managed to get up today and get some work done, then took my boy to art camp. Yesterday saw me hunt for him in the car park. He is 13, not a big deal, but today they ensured that no child from his group would be let out without a parent coming to pick him up. Of course I was the last one there, so I managed to cause a lot of delay for all the teenagers minding the place. Lordie.

    Today was the release of the brand new, all shiny, will-solve-everything financial system in my workplace. This thing will, and I quote, see the institution hopefully do away with lots of administrative staff. It was supposed to roll out at 9am. That became 1pm. At 2.30pm there was no sign, and I had to collect my son and make it home to work from there.

    At home in the afternoon, maybe it was the coffee, maybe the consciousness of the extra needs of my son, but I was alerted and somewhat agitated. I got as much done as I could by 5.30, then made dinner.

    By 6.30pm I and my son were online, playing our very first round of Dungeons and Dragons. The DM is a friend from work and there was a third person joining us. My son finds it hard to regulate his excitement, even his voice, so I had to tell him to ease up on the volume a few times. This was enough to see him upset, thinking that I was making him feel left out. Maybe I was. The truth is that I have no friends, no activities and no hobbies other than this, and the chance to do something, anything, just for me, is rare. And he didn’t like it. I hope we get to do it again, it was a good space for my brain to be in.

    And now, the laundry is out of the machine, the clothes are laid out for tomorrow, and I will be at my computer by 6am at the latest to see if I can sort out the financial issues of my unit. Talk to you then.